1 per 40,000 - 100,000 people worldwide suffer from ataxia-telangiectasia, Genetics Home Reference website ... see also overview of Ataxia Telangiectasia.
approx 1 in 40,000 or 0.00% or 6,800 people in USA [Source statistic for calcuation: "1 per 40,000 - 100,000 people worldwide suffer from ataxia-telangiectasia, Genetics Home Reference website" -- see also general information about data sources]
Ataxia Telangiectasia is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Ataxia Telangiectasia, or a subtype of Ataxia Telangiectasia, affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Ataxia Telangiectasia as a "rare disease". More information about Ataxia Telangiectasia is available from Orphanet
The following statistics relate to the prevalence of Ataxia Telangiectasia:
The following statistics relate to the incidence of Ataxia Telangiectasia:
16 MEDICAL BOOKS ONLINE! Review excerpts from medical books online, free, without registration, for more information about the prevalence and/or incidence of Ataxia Telangiectasia.
Cerebellar medulloblastomas represent 20% of pediatric primary brain tumors (associated with (ataxia-telangiectasia, basal cell nevus syndrome). Cerebellar astrocytomas, fourth ventricle ependymomas, and brainstem gliomas are also more common in children than in adults.
Source: The 5-Minute Pediatric Consult, 2008
The term 'prevalence' of Ataxia Telangiectasia usually refers to the estimated population of people who are managing Ataxia Telangiectasia at any given time. The term 'incidence' of Ataxia Telangiectasia refers to the annual diagnosis rate, or the number of new cases of Ataxia Telangiectasia diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.
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