Prevalence and Incidence of Anencephaly
Anencephaly: Rare Disease
Anencephaly is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Anencephaly, or a subtype of Anencephaly,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Anencephaly as a "rare disease".
More information about Anencephaly is available from Orphanet
Incidence (annual) of Anencephaly:
less than 4,000 cases (the rate for spina bifida and anencephaly, NWHIC) ... see also overview of Anencephaly.
Incidence Rate:
approx 1 in 68,000 or 0.00% or 4,000 people in USA [Source statistic for calcuation: "less than 4,000 cases (the rate for spina bifida and anencephaly, NWHIC)" -- see also general information about data sources]
Incidence extrapolations for USA for Anencephaly:
4,000 per year,
333 per month,
76 per week,
10 per day,
0 per hour,
0 per minute,
0 per second.
[Source statistic for calculation: "less than 4,000 cases (the rate for spina bifida and anencephaly, NWHIC)" -- see also general information about data sources]
Incidence of Anencephaly:
Each year in the U.S., 4,000 pregnancies are affected by birth defects
of the spine and brain, called spina bifida and anencephaly. (Source: excerpt from Folic Acid: NWHIC)
Incidence statistics for Anencephaly:
The following statistics relate to the incidence of Anencephaly:
- 0 infants were born alive with anencephalus and similar neural tube defects in the UK 2002 (University of Ulster, 2003)
- 0 fetal deaths or still births occurred due to anencephalus and similar neural tube defects in the UK 2002 (University of Ulster, 2003)
- 12 cases of induced abortions occurred following prenatal diagnosis of anencephalus and similar neural tube defects in the UK 2002 (University of Ulster, 2003)
- Anencephalus and similar neural tube defects occurred in 4.08 per 10,000 births in the UK 2002 (University of Ulster, 2003)
- more statistics...»
More Statistics about Anencephaly:
Hospitalization statistics
All statistics for Anencephaly
About prevalence and incidence statistics:
The term 'prevalence' of Anencephaly usually refers to the estimated population
of people who are managing Anencephaly at any given time.
The term 'incidence' of Anencephaly refers to the annual diagnosis rate,
or the number of new cases of Anencephaly diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.
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