Aagenaes syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Aagenaes syndrome, or a subtype of Aagenaes syndrome,
affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)
Ophanet, a consortium of European partners,
currently defines a condition rare when it affects 1 person per 2,000.
They list Aagenaes syndrome as a "rare disease".
Source - Orphanet
Aagenaes syndrome: Introduction
Prognosis of Aagenaes syndrome: Appropriate treatment can usually lead to a normal life span.
Complications of Aagenaes syndrome:
see complications of Aagenaes syndrome
Symptoms of Aagenaes syndrome: see symptoms of Aagenaes syndrome
Complications of Aagenaes syndrome: see complications of Aagenaes syndrome
Treatments for Aagenaes syndrome:
see treatments for Aagenaes syndrome
Main name of condition: Aagenaes syndrome
Other names or spellings for Aagenaes syndrome:cholestasis [lymphedema syndrome], hereditary cholestasis with lymphoedema, Cholestasis lymphedema syndrome, CHLS, LCS, LCS1, Lymphedema [cholestasis syndrome]
Cholestasis-oedema syndrome, Norwegian type
Source - Diseases Database
CHLS, Cholestasis lymphedema syndrome, LCS, LCS1, Lymphedema [cholestasis syndrome]
Source - Office of Rare Diseases (ORD) of the National Institutes of Health (NIH)
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